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Stories from patients or carersThese stories are written by people with experience of a rarer cancer. They're written in the words of the patients or carers, so that you can understand just how it was for them. Many people find that by reading another person's cancer journey they learn something that helps them or others in their family along there way. We welcome your additions to this section of our website. If you would like to have your story published here, please read the guidelines for writing stories.
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Gwen
Oesophageal cancer
I was diagnosed on the 21st December 1994. I had been experiencing severe chest pains and had wondered if I was having a heart attack.
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Jenny
Cancer of the vulva
If you think bearing and giving birth to a baby is an undignified process, then believe me, having cancer of the vulva is even worse.
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Judith
Gastrointestinal Stroma Tumour (GIST)
This is a story which illustrates how difficult it can be to diagnose a rare cancer, simply because even the consultants have not seen it before.
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Linda
Epithelioid Haemangioendothelioma (EHE) of the aorta
Like Judith's story, mine is also a very rare cancer, which was extremely difficult to diagnose.
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Anne
Peritoneal adenoma
I spoke to you about two years ago and explained that I had peritoneal adenoma.
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Maria
Ependymoma - spinal cord tumour in lumbar area
It was November 2001, when I was diagnosed with cancer.
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Louise
Laryngeal cancer - S.N.A.P. (Speech Needs Are Priority)
Twelve years ago my vocal chords were removed due to cancer.
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Tricia
Squamous cell carcinoma (SCC) of nasal septum
I was diagnosed with SCC of the nasal septum in
Aug 2005.
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Sian
Jejunal adenocarcinoma
I am 32 years old and up until the beginning of this year I thought I was a reasonably fit and well woman.
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Jay and David
Cholangiocarcinoma
The events began in October 2004 when Jay woke up one morning and had turned yellow.
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Elizabeth
Basal cell carcinoma
The rodent ulcer I had on the side of my nose was cut out under local anaesthetic sometime in 1988.
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Clare
Chondrosarcoma
My daughter, Clare, was working away from home but when we saw her in the summer of 2002 she appeared to have a problem with her L eye lid.
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Mr Wright's story
Carcinoma of the mouth
I think my story shows why I think long term aftercare for people in my situation is not good and why I feel abandoned.
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Sandra
Liver cancer
My symptoms began in late 2005 when I began to feel more tired than usual and was not eating particularly well.
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Kirsty and her family
Diffuse intrinsic pontine glioma
It was a phone call from my mother that changed things.
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Andrea's Mum
Cholangiocarcinoma
My mum was a 64 yr old woman, never smoked or drank and led a fit and healthy life.
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Lorna
Endometrial stromal sarcoma
When a diagnosis of fibroids was made by my GP in Spring 2002, I was just relieved that something could be done.
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Patricia
Leiomyosarcoma of the uterus
I have Leiomyosarcoma and I am writing to let you know my journey so far with this.
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Rachael
Ganglioglioma
After the birth of my son I started experiencing excruciatingly painful headaches coupled with visual disturbances.
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Ian
Chronic eosinophilic leukaemia
In 2005 I was internally referred by Endocrinology to Haematology at my local hospital.
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Chris
Clear cell sarcoma
In February 2002 I was diagnosed with a clear cell sarcoma (CCS) on the ‘funny bone’ of my left elbow.
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URGENT request for your help!
Wed, 13 Jan 2010
We are putting together a series of booklets called "Patient Experiences" and are seeking patients to fill in a short questionnaire.
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NCRI Clinical Studies Group
Tue, 12 Jan 2010
The National Cancer Research Network is recruiting patients and members of the public to join their NCRI Clinical Studies Groups.
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