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CHORDOMA
CHORDOMA  SUPPORT GROUP

An independent, international, online, support group for all those affected by Chordoma
to offer each other friendship, support and information.


More about Us * Active since 2001 * Contact us at this email


 Please use only the New Posts message board .

You may add to an older thread on another board but, please, start new threads on the New Posts list. This is because we are backing up all the threads since 2001, one at a time, (!) and it's going to take a while. 
                                           W
e are up to July 2007.

We have been told that the MSN Groups service will close in February 2009.  We have another server and will be updating you soon on the transfer progress.

This is an independent, international, online, support group for all those affected by Chordoma.
There is no charge for the use of this website and we do not fundraise for the site.

This is a peer group, who focus on day to day management of the disease and treatments.
This site cannot replace professional, medical advice.

We welcome patients, caregivers, family and friends. More

 

 

  We comply with the
HONcode standard for
health trust worthy information:
verify here

Trouble accessing this site? Contact us for help here.   

 
  New Messages
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November 2008 Newsletter - Better late t...
It's nearly moving time! We are collecting all the old files from this site, thousands of them. MSN offered us an inside move  but the new site would be Facebook style so we are heading...
MSN NicknameChordoma_managers   12-02-08
Chordoma reccurance
Rodney: that sounds like the last surgery I had....there is a titanium plate now where they went in and they cut the ear canal. Small price to pay though! Please keep us posted and sending y...
MSN Nicknameshoozgirl   12-02-08
painkillers
Dear KoKoPati2: I know this reply is a little late. If she isn't already, she should be under the care of a pain management doctor. While I was recovering, the "regular" doctors...
MSN Nicknamecalbainer7   12-02-08
Chordoma reccurance
I talked to the surgeon today and he said the best option was to go in from behind the ear and remove a small section of my skull to have a better view of the tumor. That is what was discussed with ...
rblayton   12-01-08
 
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