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Sporting spirit raises more than £10,000!

Whitley Bay LifeguardsCarver Wolverhampton City Marathon Events 2008 was a huge success on 7 September, despite the weather. Brain Tumour UK had a great turn-out of participants and supporters for the full and half marathons, 15k cycling, and half marathon relay challenge.

Taking part in two of the events – and raising £2,500 for us by doing so - was Richard Boult, Purchasing Director Designate for Carver (Wolverhampton) Limited, whose wife Joanne was recently treated for a brain tumour.

John and Helen Turner, along with Aaron Flavell, took part in the half marathon to support their friend, Vanessa Voysey, who last year lost her three-year-old son Mewen Dampure to a brain tumour.

In total, the Carver Wolverhampton City Marathon Events are set to raise more than £10,000 for us which we will use to develop further support services in Wales and the West Midlands. We would like to give our heartfelt thanks to everyone whose hard work and sporting spirit made the day such a success – read more.

If you would like to raise money for Brain Tumour UK or organise an event, please email Trudy, our community fundraiser, on trudy.thomas@braintumouruk.org.uk 

 
What we do

Brain Tumour UK supports brain tumour patients, their families, friends and carers through making connections, providing information and funding research.

If you want to talk, we're here to listen: Call our Helpline

For advice and support, whether you have a brain tumour or are caring for someone, you can call our Helpline on 0845 4500 386 (10am - 1pm, Monday to Friday). We can also put you in touch with our free telephone support service known as Phone Pals and with our network of local Support Groups.

 
A step in the right direction!

Having a brain tumour is no barrier to adventure and new experiences for some people. We had two Peters take on different challenges earlier this year to raise awareness and to raise money for Brain Tumour UK. They also come along and presented their stories at the annual conference at Edgbaston Cricket Ground on Monday 14 July along with other inspirational patients.

  • Peter Buller has embarked on a three-week walk – or as he calls it, a ‘winding wobble to Walsingham’ – in celebration of 25 years of living with a brain tumour. Read about his journey at walsinghamwobble.blogspot.com and give him your support via his Justgiving page.
  • Peter Davison cycled all the way from Land’s End to John O’Groats and raised more than £10,000 for Brain Tumour UK. He came along to the conference in full cycling gear with his bicycle and presented his achievement. To see the details of his route and weblog see his Justgiving page.

Read about their stories and others in our Patients’ Forum. If you have a story to tell that you’d like to share with everyone please email us.

Walking the Talk

1,725 miles were walked on Easter Monday at the start of a 2008 challenge to ‘walk the world’! The Ed Evans Foundation organised the occasion which saw 220 eager walkers, and many eager dogs, setting off across cliff tops. More …

The mileage from these walks is being donated to the International Brain Tumour Alliance's Walk Around the World for Brain Tumours, the target for which is 120,000 kms or three times around the globe at the Equator. For more information about the World Walk and the International Brain Tumour Awareness Week (26 October to 1 November 2008), please see www.theibta.org or contact kathy@theibta.org

Kathy Oliver, Secretary of the International Brain Tumour Alliance, attended the conference and presented on collaboration, cooperation and hope challenges for the brain tumour journey, see her presentation here.

 
Approaching brain tumours from the twenty-first century

Almost 100 delegates from throughout Scotland met for a one-day meeting titled ‘Diagnosis and Management of Brain Tumours in the Twenty-first Century’ during International Brain Tumour Awareness Week. Jenny Baker of Brain Tumour UK spoke at the seminar and other speakers included Dr Alasdair Rooney (Psychiatry, Edinburgh (on depression, particularly how it affects glioma patients), Prof. Donald Hadley (Neuroradiology, Glasgow) on current imaging techniques and how they are being used, and Dr Willie Stewart’s (Neuropathology, Glasgow) on moving towards individualised therapy.

Read more …

 
A NICE result at last!

Temodal and Gliadel Wafers are finally available on the NHS as possible therapies following a two-year appraisal by the National Institute for Health and Clinical Excellence (NICE).

If you are one of the 2,000 people diagnosed annually in the UK with a high-grade glioma, ask your GP and/or consultant if Temodal (temozolomide) and/or Gliadel Wafers (carmustine implants) are the right treatments for you. You will almost certainly be eligible for Temodal which can be administered with and after radiotherapy. Gliadel Wafers contain an anti-cancer drug and are inserted in the brain during surgery. NICE has recommended Gliadel Wafers for the treatment of newly-diagnosed high grade gliomas where 90% or more of the tumour is surgically removed.

“We are watching to ensure that these treatments are made available to everyone who needs them, when they need them,” says Jenny Baker, Brain Tumour UK’s Chief Executive. Copies of Carmustine implants and temozolomide for the treatment of newly diagnosed highgrade glioma are available to download or order printed copies of the leaflet from the NHS Response Line 0870 1555 455, quoting reference N1268.

 
Phone Pals

Our telephone support group service is proving to be a great success.

Five groups up and running and more planned. Why not join us today and talk to people who understand?

for more information

Arctic adventure 2009!

Take part in the Swedish Arctic Open Charity Challenge and raise funds for
Brain Tumour UK
Arctic Adventure 2009
22 February – 1 March 2009
Fee includes flights, accommodation and pre-challenge training weekend in November. Limited number of places so book soon!   Read more …

 
Appeal

We want to do all we can to help anyone affected by a brain tumour. For more than ten years, we've provided a Helpline, support groups, regular newsletters and funded vital research into the causes and effects of brain tumours, and their treatment.
We also run the Denny Care & Relief Fund, a very personal fund which helps people with a brain tumour to have whatever they most need, whether that is a wheelchair, a washing machine or a holiday.

Our work makes such a difference to people who need our help and support. To continue this valuable work, however, we need your help to raise much-needed funds.

Charity Choice donate online logo

Click on the Charity Choice logo to make a donation online. This service is free and administered by a secure system with the Co-operative Bank plc.

Alternatively you can post your donation to:
Freepost RRAT-GBTJ-TRKG, Brain Tumour UK, PO Box 27108, Edinburgh EH10 7WS

 
 
Free Publications
Santa Run!

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Santa Run

More details …

7 December, London

Christmas Cards

Make Christmas wishes come true – every card sold raises  money for care and research

Christmas Cards

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Calls4Business


New fundraising initiative launched!

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Patient Forum

Read the inspirational and often moving stories of brain tumour patients here

A-Z of fundraising
There's no shortage of ways to raise funds - click here for ideas!

In Association with Amazon.co.uk

Just by shopping at Amazon, you can raise money for us.



Runners Wanted

British 10k London Run - 12 July 2009

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