Thu, 11 Mar 2010
Rarer Cancers Forum

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Check how your Primary Care Trust (PCT) is doing in ensuring that people with rarer cancers receive the treatments they need.

Rare cancers
We are currently developing this section of our website so that we build up a database of information about rare and less common cancers.

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Links to other sites that may be of interest.

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Cancer related educational resources.

Clinical trials
Information about getting involved in clinical trials.

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Your Patient's Right to Treatment: Applying for NHS Exceptional Funding for Treatment

This 32-page booklet was written by a barrister, Peter Telford.  It was launched at the Rarer Cancers Forum Parliamentary Summit at the Houses of Parliament on 19 June 2008.

The booklet is designed to guide consultants whose NHS patients need Primary Care Trust (PCT) approval for funding for rarer cancers.  It explains the processes of initial application, appeal and fresh application.  It highlights the key role of the consultant in supporting patients' applications and gives advice on writing letters of support.

The booklet is supported by an equal unrestricted grant from Bayer and Bristol-Myers Squibb. 

Click here to download the booklet for free. 
  Latest News
Cancer moves to top of health agenda
Wed, 10 Mar 2010
Recent meeting across the political divide agree NICE process needs to be sped up and recognizes the need for more detailed patient information
read article
NICE Appraisal - Gastric Cancer
Wed, 13 Jan 2010
Patient Experts needed for NICE appraisal of gastric cancer (advanced) - capecitabine
read article
URGENT request for your help!
Wed, 13 Jan 2010
We are putting together a series of booklets called "Patient Experiences" and are seeking patients to fill in a short questionnaire.
read article
NCRI Clinical Studies Group
Tue, 12 Jan 2010
The National Cancer Research Network is recruiting patients and members of the public to join their NCRI Clinical Studies Groups.
read article
Request for Patient Stories
Tue, 12 Jan 2010
Freelance journalist seeking stories from women living with rarer cancers.
read article

The Rarer Cancers Forum is UK registered charity No. 1109213