The Rarer Cancers Forum: Educational resources
Thu, 11 Mar 2010
Rarer Cancers Forum

Trust Us?
Check how your Primary Care Trust (PCT) is doing in ensuring that people with rarer cancers receive the treatments they need.

Rare cancers
We are currently developing this section of our website so that we build up a database of information about rare and less common cancers.

Links
Links to other sites that may be of interest.

Educational resources
Cancer related educational resources.

Clinical trials
Information about getting involved in clinical trials.

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Index of educational resources

Further educational resources are in the process of development, so keep an eye on this section of the website!

Advanced Stomach Cancer: Care and Treatment
An information pack for patients with advanced stomach (gastric) cancer.

Booklet for consultants - Your Patient's Right to Treatment
Booklet providing guidance for consultants on applying for NHS exceptional funding for treatment.

Exceptional England?
Investigates why patients in different parts of England experience varying outcomes from PCT exceptional cases panels.

Exceptional Scotland?
RCF report of audit of policies and processes used by health Boards to determine exceptional funding requests.

Exceptional cases funding by PCTs
Rarer Cancers Forum carried out an audit audit of the policies and processes used by PCTs to determine exceptional funding requests.

New leaflet and poster
A new leaflet for patients is now available as well as a poster publicising the Rarer Cancers Forum.


Off limits (report on off-label treatments)
An investigation into NHS organisations' policies and processes for determining requests for the use of off-label treatments for people with cancer.

Rarer Cancers: Access to Best Care
An information pack for patients.

Turning it Around: Cancer and Nutrition
A DVD for cancer patients and their families.

Types of Cancer: the Basics
A booklet for patients that explains how different types of cancer originate from different cell types.

  Latest News
Cancer moves to top of health agenda
Wed, 10 Mar 2010
Recent meeting across the political divide agree NICE process needs to be sped up and recognizes the need for more detailed patient information
read article
NICE Appraisal - Gastric Cancer
Wed, 13 Jan 2010
Patient Experts needed for NICE appraisal of gastric cancer (advanced) - capecitabine
read article
URGENT request for your help!
Wed, 13 Jan 2010
We are putting together a series of booklets called "Patient Experiences" and are seeking patients to fill in a short questionnaire.
read article
NCRI Clinical Studies Group
Tue, 12 Jan 2010
The National Cancer Research Network is recruiting patients and members of the public to join their NCRI Clinical Studies Groups.
read article
Request for Patient Stories
Tue, 12 Jan 2010
Freelance journalist seeking stories from women living with rarer cancers.
read article

The Rarer Cancers Forum is UK registered charity No. 1109213