The Rarer Cancers Forum - Message boards

Thu, 02 Sep 2010

	Posts	Replies	Views	Last Updated
[-] Access to services Let us know your experience (good or poor) of gaining access to cancer services. We'll use the information to help improve care.
Access to a consultant Please let us know your experiences of getting referred to a consultant.	1	9	13628	Jan 15, 2009 - 02:42AM By delowen007
Access to drugs/chemotherapy Please let us know your experiences of gaining access to drugs/chemotherapy.	6	10	3261	Jun 15, 2010 - 11:40AM By administrator
Access to radiotherapy Please let us know your experiences related to radiotherapy treatment e.g. waiting time, availability of newer types of radiotherapy such as stereotactic radiotherapy.	1	4	1826	Oct 31, 2008 - 04:15PM By wanderer
Early/Late Diagnosis Please tell us how long from first consultation with your GP it took you to obtain your diagnosis. Was that diagnosis correct? Are you happy with the service that you received?	1	0	156	Jun 14, 2010 - 03:53PM By administrator

	Posts	Replies	Views	Last Updated
[-] Long term issues Please share your experiences of long term issues that have affected you after the treatment of your rarer cancer was completed
Long term emotional or psychological reactions Please tell us about any long term emotional or psychological reactions you have experienced after completion of your treatment	2	8	2558	Jul 20, 2009 - 09:39PM By LadyLilac
Long term physical problems Please tell us about any long term physical problems you have experienced after completion of your treatment	6	4	5982	Sep 24, 2009 - 10:10AM By administrator

	Posts	Replies	Views	Last Updated
[-] Networking Here's where we help put people (patients and family/friends) in touch with others in similar situations.
Networking between families and friends of people with a rarer cancer Making contact with other families and friends of people with a rarer cancer.	9	69	11456	Jul 21, 2010 - 12:36PM By daisy_bella
Networking between patients Making contact with others who have the same or a similar rarer cancer to yours.	18	78	19531	Jun 17, 2010 - 05:59AM By Buffy

	Posts	Replies	Views	Last Updated
[-] Relevant links Other charities often require opinions from cancer patients. Current projects are listed here
Orchid Cancer Penile Cancer Day Orchid Cancer would like as many replied as possible to their survey to ensure they develop the most appropriate service and work better for help men and their families affected by penile cancer. If you can, please complete the survey on http://www.orchid-cancer.org.uk/310/Penile-Cancer	1	0	152	Jun 08, 2010 - 09:59AM By administrator

	Posts	Replies	Views	Last Updated
[-] Sharing facts and information Sharing facts and information about living with a rarer cancer
Benefits and services Share facts and information about Department for Work and Pensions benefits and services for sick or disabled people and their carers	7	28	7854	Apr 20, 2010 - 07:18PM By snow_drop
Insurance Share facts and information about insurance	1	2	2170	Feb 19, 2009 - 02:56PM By benjamingig

	Posts	Replies	Views	Last Updated
[-] Sharing your experiences Sharing your experiences about living with a rarer cancer
Complementary therapies - discuss what works and what doesn't An opportunity for you to share experiences of complementary therapies	3	5	3977	Sep 02, 2010 - 11:12PM By chiropractic
Coping with a rarer cancer - share your tips! Please share your tips on ways of coping with a rarer cancer	3	6	4663	Jul 28, 2007 - 05:04PM By darran1066
Diagnosis - tell us your experiences Please let us know your experiences related to the diagnosis of your rarer cancer	4	27	5517	May 01, 2010 - 03:38PM By AthinaBlake
How relatives and friends can help Please share ways in which relatives and friends can support people with a rarer cancer	2	1	3249	Sep 24, 2006 - 05:25AM By Rain
Palliative care Please share your experiences of palliative care - either as a patient or carer.	1	4	1178	Aug 05, 2009 - 11:55AM By administrator
Treatment and its follow-up - we'd like to hear your experiences A place where you can discuss your experience of being treated for a rarer cancer and the follow-up process	5	14	6695	Jul 10, 2009 - 08:12AM By Mand
Your particular type of rarer cancer - please tell us about it Here's where you can share your experience of having a particular type of rarer cancer	22	254	30318	Aug 25, 2010 - 10:52PM By GatwickLady

	Posts	Replies	Views	Last Updated
[-] Supporting the Rarer Cancers Forum Place where you can share ideas about ways of supporting the Rarer Cancers Forum
Fundraising ideas! Share ideas about ways of raising funds to support our work and enable us to do more to help people with rarer cancers	4	1	3470	Jun 08, 2010 - 10:13AM By administrator
Other ways of supporting us Apart from fundraising, how else can people support the Rarer Cancers Forum? Please share your ideas!	2	2	2443	Mar 24, 2010 - 05:56PM By jeanniez

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