Tue, 07 Oct 2008
Rarer Cancers Forum

Our mission
Our mission is to draw together people with rare and less common cancers, to give them a bigger collective voice to exact better services, and to enable them to support one another.

History
The history of The Rarer Cancers Forum - recognition of the needs of people with rare and less common cancers.

Our sponsors
The sponsors of The Rarer Cancers Forum.

Website disclaimer
Rarer Cancers Forum disclaimer

Rarer cancers manifesto
Our rarer cancers manifesto.

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Organisational structure of the Rarer Cancers Forum

Structure of Rarer Cancers Forum from October 2006


Registered Directors/Trustees

  • Susan Graham
  • Gwen Harlow (Chair)
  • Jean Turner

Advisors

  • Paula Bond, Community Networks Development Co-ordinator, Macmillan Cancer Support
  • Ciarán Devane, Chief Executive, Macmillan Cancer Support
  • Vanessa Jenkins, Retired General Practitioner
  • Vivien Reed, National Association of Laryngectomee Clubs
  • Clare Shaw, Consultant Dietitian, Royal Marsden NHS Foundation Trust
  • Andrew Stanley, Consultant Prescribing Pharmacist, City Hospital Birmingham, and Network Lead for Oncology Pharmacy, Pan Birmingham Cancer Network
  • Bella Talwar, Clinical Lead Dietitian, Head and Neck Cancer, University College Hospitals NHS Foundation Trust
  • Linda Taylor, patient
  • Peter Telford, Barrister
  • Stephen Young, Hon Senior Research Fellow, Manchester University

Medical advisors

  • Ian Judson, Professor of Cancer Pharmacology, Institute of Cancer Research; Consultant Medical Oncologist and Head of Sarcoma Unit, Royal Marsden NHS Foundation Trust
  • Frank Saran, Head and Consultant Clinical Oncologist (Neuro-oncology unit) and Consultant Clinical Oncologist (Sarcoma Unit), Royal Marsden NHS Foundation Trust
  • Philip Savage, Consultant in Medical Oncology, Charing Cross Hospital, Imperial College Healthcare NHS Trust
  • Steve Schey, Consultant Haemato-oncologist, King's College Hospital NHS Foundation Trust
  • Beatrice Seddon, Consultant Clinical Oncologist (Sarcoma Unit), University College Hospital, University College London Hospitals NHS Foundation Trust
  • Karol Sikora, Professor of Cancer Medicine and Honorary Consultant Oncologist, Imperial College School of Medicine, Hammersmith Hospital, London; Dean of Medical School, University of Buckingham 


Chief Excecutive and Company Secretary

Penny Wilson-Webb

Patrons

Professor The Baroness Ilora Finlay of Llandaff, Honorary Professor of Palliative Medicine, University of Wales School of Medicine, Cardiff; Consultant, Velindre Cancer Centre, Cardiff; President of the Chartered Society of Physiotherapy; Crossbench Peer, House of Lords.

Professor Martin Gore, Medical Director, Royal Marsden NHS Foundation Trust, London; Professor of Cancer Medicine at The Institute of Cancer Research in London.

  Latest News
Cardiff Half Marathon
Mon, 29 Sep 2008
Please sponsor Mags Donovan in the Cardiff Half Marathon on 19 October 2008.
read article
Have you or your family been refused treatment for a rarer cancer?
Mon, 15 Sep 2008
If you or your family have been refused PCT funding, please contact us.
read article
Rarer Cancers Forum Annual Conference
Mon, 15 Sep 2008
The conference is open to all people with rarer cancers and their families.
read article
New RCF report reveals striking postcode lottery in the chances of having an exceptional request for cancer treatment approved
Mon, 11 Aug 2008
Over 1,300 cancer patients have been left to die in the last 20 months because they were not deemed exceptional enough to receive cancer treatment on the NHS
read article
Trust Us? - new section on our website!
Fri, 14 Mar 2008
It's called 'Trust Us?' and it will help you find out how your PCT is doing in ensuring people with rarer cancers receive the treatments they need.
read article

The Rarer Cancers Forum is UK registered charity No. 1109213